From September 16-18, 2024, Professor Henry Houlden and Dr Francesca Magrinelli from University College London (UCL) visited NDAL for an academic meeting and knowledge exchange. Over three intensive days, the visiting professors examined a total of 18 families.
The first group of families included cases with known genetic causes, leading to functional analysis to better understand disease mechanisms. From the second day onward, families with multiple affected members and clear genetic inheritance—yet unresolved despite current methodologies—were examined, and Long Read Sequencing (LRS) was proposed for further study.
In addition to neurological evaluations, the team addressed all inquiries from the families and collected various samples for further research. Turkish clinicians working with the patients were also present during parts of the meetings. The highly productive discussions and collaborations provided an excellent model for future engagements.
Suna and İnan Kıraç Foundation Pera Museum has received the Gold Award in the “Museums” category of the SocialBrands Data Analytics Section at Brandverse Awards 2025, organized in collaboration with Marketing Türkiye and BoomSonar.
Suna’nın Kızları has launched the Support System Against Abuse – Standard Operating Procedure (SOP) initiative in Şanlıurfa. Developed in collaboration with Nirengi Association, the program includes training sessions for school principals and guidance counselors.
The Suna and İnan Kıraç Foundation İstanbul Research Institute is pleased to welcome visitors to its new exhibition focusing on Arif Hikmet Koyunoğlu, one of the most distinctive figures of the late Ottoman Empire and early Republican period. On view from 19 June 2025 to 17 May 2026, the exhibition explores the transformation of Turkey through the lens of Koyunoğlu’s camera.