As part of an international collaboration on Ataxia-Telangiectasia (AT), a rare genetic disorder, Prof. Thomas Crawford from Johns Hopkins University and Dr. Claudio M. de Gusmao from Harvard University visited the Koç University Translational Medicine Research Center (KUTTAM) and the Rare Diseases Research Laboratory (NDAL) in Istanbul between February 4 - 7, 2025.
During their visit, the two specialists conducted in-depth clinical evaluations of five children in Turkey who may benefit from antisense oligonucleotide (ASO) therapy. The Boston-based Dr. Yu also joined the meetings virtually. AT Association Chair, attorney Güneş Uyar, was present at the sessions, which were held in collaboration with NDAL's research team.
These meetings at NDAL offered a significant opportunity to share clinical knowledge and advance the process of making ASO therapy accessible in Turkey. The next planned step is to initiate official consultations with the Ministry of Health regarding the necessary regulations.
Suna and İnan Kıraç Foundation Pera Museum has received the Gold Award in the “Museums” category of the SocialBrands Data Analytics Section at Brandverse Awards 2025, organized in collaboration with Marketing Türkiye and BoomSonar.
Suna’nın Kızları has launched the Support System Against Abuse – Standard Operating Procedure (SOP) initiative in Şanlıurfa. Developed in collaboration with Nirengi Association, the program includes training sessions for school principals and guidance counselors.
The Suna and İnan Kıraç Foundation İstanbul Research Institute is pleased to welcome visitors to its new exhibition focusing on Arif Hikmet Koyunoğlu, one of the most distinctive figures of the late Ottoman Empire and early Republican period. On view from 19 June 2025 to 17 May 2026, the exhibition explores the transformation of Turkey through the lens of Koyunoğlu’s camera.