As part of an international collaboration on Ataxia-Telangiectasia (AT), a rare genetic disorder, Prof. Thomas Crawford from Johns Hopkins University and Dr. Claudio M. de Gusmao from Harvard University visited the Koç University Translational Medicine Research Center (KUTTAM) and the Rare Diseases Research Laboratory (NDAL) in Istanbul between February 4 - 7, 2025.
During their visit, the two specialists conducted in-depth clinical evaluations of five children in Turkey who may benefit from antisense oligonucleotide (ASO) therapy. The Boston-based Dr. Yu also joined the meetings virtually. AT Association Chair, attorney Güneş Uyar, was present at the sessions, which were held in collaboration with NDAL's research team.
These meetings at NDAL offered a significant opportunity to share clinical knowledge and advance the process of making ASO therapy accessible in Turkey. The next planned step is to initiate official consultations with the Ministry of Health regarding the necessary regulations.
The Suna and İnan Kıraç Foundation İstanbul Research Institute is pleased to welcome visitors to its new exhibition focusing on Arif Hikmet Koyunoğlu, one of the most distinctive figures of the late Ottoman Empire and early Republican period. On view from 19 June 2025 to 17 May 2026, the exhibition explores the transformation of Turkey through the lens of Koyunoğlu’s camera.
Drawn from the Suna and İnan Kıraç Foundation Kütahya Tiles and Ceramics Collection, the exhibition “Extraordinary Minas” sheds light on the creativity of Minas Avramidis, one of Kütahya’s most distinctive ceramic masters. It also explores the region’s efforts to revive tile craftsmanship during the late 19th and early 20th centuries.
Suna’nın Kızları organized the second edition of the Girl-Centered Design Conference to support girls' empowerment as active agents in social life.