As part of an international collaboration on Ataxia-Telangiectasia (AT), a rare genetic disorder, Prof. Thomas Crawford from Johns Hopkins University and Dr. Claudio M. de Gusmao from Harvard University visited the Koç University Translational Medicine Research Center (KUTTAM) and the Rare Diseases Research Laboratory (NDAL) in Istanbul between February 4 - 7, 2025.
During their visit, the two specialists conducted in-depth clinical evaluations of five children in Turkey who may benefit from antisense oligonucleotide (ASO) therapy. The Boston-based Dr. Yu also joined the meetings virtually. AT Association Chair, attorney Güneş Uyar, was present at the sessions, which were held in collaboration with NDAL's research team.
These meetings at NDAL offered a significant opportunity to share clinical knowledge and advance the process of making ASO therapy accessible in Turkey. The next planned step is to initiate official consultations with the Ministry of Health regarding the necessary regulations.
Suna and İnan Kıraç Foundation, Pera Museum invites children to a vibrant space of discovery through art during the summer break. Scheduled to take place between July 22 and 31, 2025, the Summer Holiday Workshops program brings together children aged 4 to 12 with creativity, imagination, and hands-on learning.
In the Istanbul edition of Suna’nın Kızları Summer Institute, girls engaged with art, history, technology, and creativity. Enriched with special guided tours of collections and temporary exhibitions, VR experiences, and collective workshops, the program offered an inspiring space for learning and sharing.
Suna and İnan Kıraç Foundation Pera Museum has received the Gold Award in the “Museums” category of the SocialBrands Data Analytics Section at Brandverse Awards 2025, organized in collaboration with Marketing Türkiye and BoomSonar.